Commonwealth Department of Family and Community Services (Office of Carers and Disability)
The Office provides a direct link between the disability and carer communities and government, working
towards improving access, and encouraging the involvement of people with disabilities as members of
the community. This is achieved through developing policies that respond to the needs of people
with disabilities and their carers, including their capacities for participation. These
include managing disability and carer specific income support and compensation provisions;
raising the awareness of Commonwealth organisations and businesses about making their services,
facilities and employment opportunities accessible; and working with the State and Territory
governments to fund support services.
PO Box 7788
CANBERRA MAIL CENTRE ACT 2610
Ph: 1300653227
TTY: 1800672682
Email: office-disability@facs.gov.au
Web: www.facs.gov.au/disability
National Advisory Council on Disability and Carer Issues
The National Advisory Council on Disability and Carer Issues provides advice to the Government on a
broad range of issues affecting people with disabilities, their families and carer providers.
The Council's work program includes, for example:
C/- Office of Carers and Disability
Department of Family and Community Services
Box 7788
CANBERRA MAIL CENTRE ACT 2610
Ph: 1300653227 (and ask for National Advisory Council on Disability and Carer Issues)
Fax: (02) 62447976
TTY: 1800672682
Email: disabilityandcarers@facs.gov.au
Web: www.facs.gov.au/internet/facsinternet.nsf/disabilities/representation-nacdci.htm
Disability Services Program (Tasmanian Department of Health & Human Services)
The Disability Services program is made up of several teams that focus on delivering the following
services through the regional offices: Information and Education; Respite; Short Term Support;
Service Coordination; Resource Support; Day Options; Residential Services. The Regional Offices
of Disability Services act as a point of contact for people with disabilities. The Service will
respond to each referral on an individual basis and determine the type and extent of assistance
provided according to the person's presenting need.
Southern Regional Office:
Ground Floor, Woodhouse Building,
St Johns Park
NEWTOWN 7008 TAS
Ph: 03 6230 7600
Web: www.dhhs.tas.gov.au
Northern Regional Office:
John L Grove Centre,
33-39 Howick Street
LAUNCESTON 7250 TAS
Ph: 03 6336 4130
Web: www.dhhs.tas.gov.au
North West Regional Office:
2nd Floor Parkside,
Brickwell Street
BURNIE 7320 TAS
Ph: 03 6434 4103
Web: www.dhhs.tas.gov.au
Disability Ministerial Advisory Council (MAC) Tasmania
The role of the Disability Ministerial Advisory Council (MAC) is to provide the Minister
for Health and Human Services with advice on policies, planning issues, programs and all
developments that affect people with disabilities in Tasmania.
Gellibrand House
St Johns Park
New Town Tasmania 7008
Ph: 03 6230 7525
Fax: 03 6230 7526
Email: dsmac@dhhs.tas.gov.au
Department of Ageing, Disability and Home Care New South Wales (NSW)
The NSW Department of Ageing, Disability and Home care administers and delivers a range
of programs of care and support to older people, people with a disability and their carers
to enable them to have equitable opportunity to participate in community life. The DADHC
provides the following types of general services for people with a disability: Accommodation
Support; Post School Programs; Advocacy and Information Services; Attendant Care Program;
Behaviour Intervention Service; Community Support Teams; Day Programs; Home and Community
Care Program (HACC); Local Support Coordination; Respite.
Level 5, 83 Clarence Street
SYDNEY NSW 2000
Ph: (02) 82702000
Fax: (02) 82702167
Email: info@dadhc.nsw.gov.au
Web: www.dadhc.nsw.gov.au
Disability Council of New South Wales
The Disability Council of New South Wales is the official adviser to the NSW Government
on issues concerning people with disabilities in NSW. The mission of the Council includes:
to maintain and enhance delivery of quality advice to Government that promotes inclusion
and awareness of people with a disability in the community; to promote the integration of
people with a disability into the community through community awareness training and
education; to encourage diversity, flexibility and innovation in the provision of
services; and to consult with people with a disability, their families and carers.
L19, 323 Castlereagh Street
SYDNEY NSW 2000
Ph/TTY: (02) 92112866 or Tollfree: 1800 044 848
Fax: (02) 9211-2271
Email: info@discoun.nsw.gov.au
Web: www.discoun.nsw.gov.au
Disability Services Division (Victorian Department of Human Services)
The role of the Disability Services Division is to fund agencies to provide direct
continuing care and support for people with intellectual, physical, sensory and
neurological disabilities and acquired brain injury in Victoria. The Department
also directly provides some continuing care and support services for people with
intellectual disabilities. For information about community supports and services
for people with a disability, their families and carers in your local area, contact
your regional Department of Human Services Disability Intake and Response Services.
Level 2, 555 Collins Street
MELBOURNE VIC 3000
Ph: (03) 96168654 or Freecall: 1800783783
Ph: (03) 96167962 (Information Line)
TTY: 1300131525
Fax: (03) 96167403
Web: www.dhs.vic.gov.au/disability
Disability Advisory Council of Victoria (DACV)
The principal purpose of the Disability Advisory Council of Victoria (DACV) is to
provide advice to the Victorian Minister for Community Services on issues concerning
people with disabilities in order to assist the Victorian Government achieve its stated
policy objectives as detailed in the Victorian State Disability Plan.
5/555 Collins St
MELBOURNE VIC 3000
Ph: 1300 880 043
TTY: (03) 9616 8896
Fax: (03) 9616 7300
Email: dacv@dhs.vic.gov.au
Web: www.dac.vic.gov.au
Disability Services Queensland
Disability Services Queensland (DSQ) provides services and support to Queenslanders with a
disability, their families and their communities. It works closely with other agencies,
service providers and communities to enhance service delivery and allow people with a
disability and their families more input into the policies that affect them. DSQ's
Strategic Framework provides the basis for planning, policy, and service development
across all Queensland Government departments to meet the needs of people with a
disability and their families.
GPO Box 806
BRISBANE QLD 4001
Ph: 1800 177 120
TTY: 1800 010 222
Fax: (07) 32248037
Email: dial@disability.qld.gov.au
Web: www.disability.qld.gov.au
Queenslanders with Disabilities Network Inc (QDN)
QDN is a statewide network of people with disability. QDN is for people with disability,
with people with disability, by people with disability, for citizenship and social justice.
QDN is funded by the Queensland Government (Disability Services Queensland) as
a Ministerial advisory group. It is our vision to connect people with disability to
build a voice of Queenslanders with disability to represent our views on issues that
affect us.
Reply Paid Suite 11
7 O'Connell Terrace
BOWEN HILLS QLD 4006
Ph: (07) 3252 8566 or 1300 363 783 (local call fee)
Fax: (07) 3252 8477
Email: qdnbrisbane@qdn.org.au
Web: www.qdn.org.au
Disabilities Services Commission Western Australia
The Disability Services Commission promotes access to quality support and services for people
with disabilities, and protects the rights of people with disabilities who are especially vulnerable.
PO Box 441
WEST PERTH WA 6872
Ph: (08) 94269200 or Freecall 1800998214
Ph: (08) 92231111 (After Hours Crisis Care)
TTY: (08) 94269315
Fax: (08) 92262306
Email: dsc@dsc.wa.gov.au
Web: www.dsc.wa.gov.au
Ministerial Advisory Council for Disability Services
The Ministerial Advisory Council provides advice to government on matters relating to
issues affecting the lives of Western Australian people with disabilities, their
families and carers. These issues include accommodation, respite, access, therapy,
employment, education, family support and transport.
PO Box 441
WEST PERTH WA 6872
Ph: (08) 9426 9269 or freecall: 1800 629 269
TTY: (08) 9426 9321
Fax: (08) 9226 2316
Email: advisory@dsc.wa.gov.au
Department for Families and Communities - Disability Services
The Department for Families and Communities is committed to promoting equal opportunity
for people with disabilities and to encourage the development of responsive services
to support them to achieve independent living, self-sufficiency, and inclusion and
integration into all aspects of society. The Disability Services Office is committed
to the development of responsive services to assist people with disabilities.
GPO Box 292
ADELAIDE SA 5001
Ph: 08 8226 8800
Fax: 08 8124 4099
Web: www.dfc.sa.gov.au/disability-services/dso.asp
Disability Advisory Council of South Australia
The Council provides advice to the Minister for Disability on: disability policy and planning
issues; broad priorites within the disability sector; service development, research initiatives
and funding policy; quality assurance matters; directions of service review and evaluations.
Disability Advisory Council
GPO Box 292
ADELAIDE SA 5001
Ph: 08 8226 8800
Fax: 08 8124 4099
Web: www.dfc.sa.gov.au/disability-services/dso.asp
Disability ACT (Department of Disability, Housing & Community Services, Australian Capital Territory)
The role and responsibility of Disability ACT is to plan, develop strategic policy, allocate funding
and provide and monitor services for people with disability in the ACT and the families that care for them.
GPO Box 158
CANBERRA ACT 2601
Ph: (02) 6207 1086
TTY: (02) 6205 0888
Email: DisabilityACT@act.gov.au
Web: www.dhcs.act.gov.au/DisabilityACT/
ACT Disability Advisory Council
The Disability Advisory Council was established in May 2003, to independently advise and
make recommendations to the Minister for Disability and other Ministers as appropriate across
a range of issues in relation to people with disabilities. The Council has broad terms of
reference and is tasked with: advising the Minister on disability issues working in
partnership with Disability ACT on key activities; communicating the needs of people
with disabilities and families; and establishing links with the National Disability Advisory Council.
Secretariat ACT Disability Advisory Council
GPO Box 158
CANBERRA ACT 2601
Ph: (02) 6207 1086
TTY: (02) 6205 0888
Email: talyealye@netspeed.com.au
Web: www.dhcs.act.gov.au/disabilityact/advisorycouncil/council.htm
Aged and Disability Program (Northern Territory Department of Health and Community Services)
The Aged and Disability Program works in partnership to enhance opportunities for people with disabilities,
people who are ageing and their families and carers, to contribute to and participate in the community.
PO Box 40596
CASUARNIA NT 0811
Ph: (08) 89992400
Fax: (08) 89992700
Web: www.nt.gov.au/health/comm_svs/aged_dis_ccs/aged_dis_ccs.shtml
Suite 514, 365 Little Collins Street
MELBOURNE VIC 3000
PH: (03) 8676 0353
Fax: (03) 8676 0355
Email: info@acenational.org.au
Web: www.acenational.org.au
ACROD
ACROD represents organisations providing services to people with disabilities. Its
statement of purpose is that its members develop quality services and life opportunities
for Australians with disabilities.
PO Box 60
CURTIN ACT 2605
Ph: (02) 62824333
Fax: (02) 62824333
Email: acrodnat@acrod.org.au
Web: www.acrod.org.au
Alzheimers Australia
Alzheimer's Australia is the national peak body for people living with
dementia, their families and carers and provides leadership in policy and
services. Contact information for State & Territory branches of Alzheimer's
Australia is available from the national office, or via the national website.
Frewin Centre
Frewin Place
SCULLIN ACT 2615
Ph: (02) 6254 4233
Fax: (02) 6278 7225
Email: secretariat@alzheimers.org.au
Web: www.alzheimers.org.au
Amputees United of Australia (AUA)
Amputees United of Australia Inc. gives every amputee in Australia the opportunity
to voice their concerns in a more co-ordinated and effective approach at national
and state level. Our role is to inform all levels of government, the business sector
and the Australian community of the needs of amputees, in relating to their disability
and lobby for change as necessary. Contact information for State & Territory affiliated
groups is available from the national office, or via the national website.
67 Sunbeam Crescent
Panorama Heights
DEVONPORT TAS 7310
Ph: (03) 6427 9411
Fax: (03) 6427 9428
Web: www.monash.edu.au/rehabtech/amputee/AUA.HTM
Anaphylaxis Australia
Anaphylaxis Australia exists because it's members provide their skills, time and
energy on a voluntary basis to help families with food anaphylactic children. We
hold group meetings, produce newsletters and information packs, offer a range of
educational booklets/videos for purchase, and as well provide a contact-referral
list of members to help put families in touch with each other.
21 Robinson Close
HORNSBY HEIGHTS NSW 2077
Ph: 1300 728 000
Email: coordinator@allergyfacts.org.au
Web: www.allergyfacts.org.au
Anxiety Network Australia
Anxiety Network Australia is an Australia wide service empowering people who
live with high levels of anxiety and Anxiety Disorders in Australia through
the provision of a wide range of services.
PO Box 94
INDOOROOPILLY QLD 4068
Ph: 07 3366 7726
Email: sue@anxietynetwork.com.au
Web: www.anxietynetwork.com.au
Arthritis Australia
Arthritis Australia is the peak arthritis organisation in Australia and is supported
by affiliate offices in every state and territory. Arthritis Australia aims to:
promote community awareness of the problems confronting people with arthritis;
provide support, advice and information for those with arthritis and their families;
educate medical and health professionals in the treatment of arthritis; and fund
research into the causes of and cures for arthritis. Contact information for State & Territory
branches of Arthritis Australia is available from the national office, or via the national
website.
GPO Box 121
SYDNEY NSW 2001
Ph: 02 9552 6085 or Freecall 1800 111 101
Fax: 02 9552 6078
Email: info@arthritisaustralia.com.au
Web: http://arthritisaustralia.com.au
Arts Access Australia
Arts Access Australia (AAA) is a membership based organisation who works with
government agencies, arts organisations and disability organisations. Each original
AAA member is the peak arts and disability body in each state or territory. AAA's
associate members are a mixture of arts organisation and disability organisations
around Australia.
Pier 4, The Wharf
Hickson Road
WALSH BAY NSW 2000
Ph: (02) 92516844
Email: ed@artsaccessaustralia.org
Web: www.artsaccessaustralia.org
Asbestos Diseases Foundation of Australia Inc (ADFA)
The Asbestos Diseases Foundation of Australia Inc (ADFA) was founded to address the needs and
interests of men and women affected by an asbestos related disease. The Foundation aims to
provide the wider community with information about the hazards of asbestos exposure. By
doing this we hope to reduce the numbers of victims in future. The Asbestos Diseases
Foundation of Australia is made up of victims of asbestos diseases and their families,
friends and supporters.
Ground Floor, Suite 3,
133 - 137 Parramatta Rd
GRANVILLE NSW 2142
Phone: (02) 9637 8759 or Toll Free: 1800 006 196
Fax: (02) 9897 3259
Email: asbestos@optusnet.com.au
Web: www.adfa.org.au
Association of Genetic Support of Australasia (AGSA)
The Association of Genetic Support of Australasia (AGSA) Inc. was formed in
1988 to provide support and information for individuals and families affected
by a genetic condition. It provides a range of services including: information,
support and referral; education; newsletters; seminars.
66 Albion Street
SURRY HILLS NSW 2010
Ph: 02 9211 1462
Fax: 02 9211 8077
Email: agsa@ozemail.com.au
Web: www.agsa-geneticsupport.org.au
Association of Relatives and Friends of the Emotionally and Mentally Ill (ARAFEMI)
The mission of ARAFEMI is to promote and improve the well being of people affected by mental
illness. We do this by providing accommodation and support to people living with a mental
illness in the community and by providing support and information to families and carers.
Contact information for State & Territory branches of ARAFEMI and affiliated groups is
available from the national office, or via the national website.
PO Box 83
HAWTHORN VIC 3122
Ph: 03 9810 9300
Fax: 03 9810 9399
Email: admin@arafemi.org.au
Web: www.arafemi.org.au
Asthma Foundations of Australia
Asthma Foundations of Australia is an association of all the Asthma Foundations throughout
Australia. Asthma Foundations of Australia aims to eliminate asthma as a major cause of ill
health and disruption within the community. The Asthma Foundations exist to provide asthma
education, information, research, community advocacy and support to people with asthma and
their carers. Contact information for State & Territory branches of Asthma Foundations is
available from the national office, or via the national website.
Level 3, 63 Stead Street
SOUTH MELBOURNE VIC 3205
Ph: 03 9696 7861
Fax: 03 9696 7397
Email: national@asthmaaustralia.org.au
Web: www.asthmaaustralia.org.au
AUSRAPID
AUSRAPID Incorporated is a national organisation established in 1986 to increase
the sporting and recreational opportunities for all people with an intellectual
disability within Australia.
63 Carrier Street
BENALLA VIC 3672
Ph: 03 5762 7494
Fax: 03 5762 3560
Email: mail@ausrapid.org.au
Web: www.ausrapid.org.au
Australasian CHARGE Syndrome Association
The Australasian CHARGE Syndrome Association was formed in 1988 to assist families whose
children were born with this rare condition. The Association conducts conferences every
2 years; produces a quarterly newsletter; raises funds; and supports families of
newly diagnosed children.
PO Box 91
GLENFIELD NSW 2167
Ph: (02) 9605 8475
Fax: (02) 9605 8759
Email: austcharge@hotmail.com
Web: www.austcharge.com.au
Australasian Menopause Society (AMS)
The aim of the Australasian Menopause Society is advancement of knowledge about the
menopause. The Australasian Menopause Society hopes to help bring people together, be
they doctors, nurses, paramedical or community workers who feel they would like to participate
in communication and scientific discussions for the advancement of knowledge about the menopause.
PO Box 193
LONGFORD TAS 7301
Ph: 03 6391 3122
Fax: 03 6391 3177
Email: ams@netlink.com.au
Web: www.menopause.org.au
Australasian Network of Students with Disabilities (ANSWD)
The Australasian Network of Students with Disabilities (ANSWD) is a student organization
advocating, promoting, lobbying and campaigning on disability issues. ANSWD seeks to achieve
equality, access, and representation of students with disabilities in the tertiary education sector.
Email: convener@answd.com
Web: www.answd.com
Australasian Society for the Study of Intellectual Disability (ASSID)
The mission of the Australasian Society for the Study of Intellectual Disability (ASSID) is
to enhance the skills, knowledge and commitment of it's members and to facilitate a supportive
network in order to enhance the quality of life of people with intellectual or developmental
disability.
PO Box 84
ROSANNA VIC 3084
Ph: 1800 644 741 (within Australia)
Fax: 03 9497 4567
Email: assid.national@bigpond.com
Web: www.assid.org.au
Australian Addison's Disease Association Inc
The goals of the Australian Addison's Disease Association are to: raise the awareness of the
Medical Profession; make the general public aware of Addison's disease; supply up to date
information to people with Addison's disease; and supply a caring network to give support
for people with Addison's disease.
PO Box 297
DORRIGO NSW 2453
Ph: (02) 66572571
Fax: (02) 66571025
Email: secretary@addisons.org.au
Web: www.addisons.org.au
Australian Angelman Syndrome Association
The Angelman Syndrome Association is the umbrella organisation for children with Angelman Syndrome
and their families in Australia. There are support groups in each state and territory. The Angelman
Syndrome Association provides support, education, advocacy, information and referral. Contact information
for State & Territory branches of the Angelman Syndrome Association is available from the national
office, or via the national website.
PO Box 554
SUTHERLAND NSW 2232
Ph: (02) 9520 5857
Email: simonek@angelmansyndrome.org
Web: www.angelmansyndrome.org
Australian Arthrogryposis Group (TAAG)
Australian Arthrogryposis Group (TAAG) Inc was started in 1990 by a group of parents who have
children with arthrogryposis. The aims of TAAG are to: provide information and contact to assist
affected individuals and their families; receive, publicise and disseminate information on
arthrogryposis; and liaise with support groups in other countries.
"Berriga"
VACY NSW 2421
Ph: 02 4938 8060
Email: berriga@telstra.com
Web: www.taag.org.au
Australian Association of the Deaf
The Association represents, promotes and preserves the Australian Deaf community, its language
and cultural heritage. It works towards a vision of a national Deaf community with equal rights
and full access in Australian society. It provides information and advice to government, industry,
service organisations and the community on a range of issues and conducts information and development
activities for the Deaf community.
PO Box 1083
STAFFORD QLD 4053
Ph: (07) 33578266
TTY: (07) 33578277
Fax: (07) 33578377
Email: aad@aad.org.au
Web: www.aad.org.au
Australian Association for Families of Children with Disability (AAFCD)
The main purpose of the Australian Association for Families of Children with Disability (AAFCD) is
to provide information, support and advocacy for families of children aged under 25 with disability
in all States and Territories of Australia. The advocacy role includes provision of information to
the Federal Government about family needs and issues and advocacy for changes required to Federal
policies and programs to address these needs and issues.
590 Orrong Road
ARMADALE VIC 3124
Ph: (03) 9500 1232 or 1800 222 660
Email: helenj@aafcd.org.au
Web: www.aafcd.org.au
Australian Athletes with a Disability
Australian Athletes with a Disability is responsible for the administration of three National
Sports Organisations for the Disabled and was formed in 2002. The three organisations are: Australian
Sports Organisation for the Disabled; Cerebral Palsy Sports and Recreation Federation of Australia;
and Wheelchair Sports Australia. All three organisations are responsible for the development of sport
for athletes with a disability and administer, promote and coordinate sporting opportunities.
PO Box S83
HOMEBUSH NSW 2140
Ph: 02 9763 5819
Fax: 02 9764 3757
Email: info@sports.org.au
Web: www.wsa.org.au
Australian Blind Golfers Association
The Australian Blind Golf Association was formed to promote the game of golf amongst Blind and
Vision Impaired Persons, and to co-ordinate blind golf between the States of Australia. The
Association aims to represent Australian blind golf internationally and to create and maintain
a register of blind golf events within Australia, players, sight classifications and handicaps.
Email: info@blindgolf.org.au
Web: www.blindgolf.org.au
Australian Caption Centre
The Australian Caption Centre is a national not-for-profit, public benevolent institution
that was opened in 1982. Our role is: to promote captioning and the use of captioning to the
Deaf and hearing impaired; to provide a wide range of free information services about captioning;
to develop and expand captioning.
Level 4, 187 Thomas Street
HAYMARKET NSW 2000
Ph/TTY: 1800 777 801
Fax: 02 9281 2198
Web: www.auscap.com.au
Australian Cerebral Palsy Association (ACPA)
The Australian Cerebral Palsy Association works towards enhancing the lives of people with cerebral
palsy and other similar disabilities by providing a national focus and leadership in areas of identified
needs, such as community education, advocacy, service provision and standards. Contact information for
State & Territory branches of ACPA and affiliated organizations is available from the national office,
or via the national website.
PO Box 237
WOODVILLE SA 5011
Ph: 08 8347 4588
Fax: 08 8347 4508
Email: cfleming@admin.cara.asn.au
Web: www.acpa-inc.org.au
Australian Chemical Trauma Alliance (ACTA)
The Australian Chemical Trauma Alliance (ACTA) provides the following services: counselling,
advice, referrals to appropriate medical and legal practitioners, and introductions to other
members for mutual support. In addition, there is a quarterly newsletter and an annual conference.
It is a national organisation operated by volunteers with State and regional representatives.
309 East Bonville Rd
BONVILLE NSW 2441
Ph/Fax: (02) 66 534 531
Email: acespade@northnet.com.au
Web: http://members.ozemail.com.au/~actall/
Australian Chron's & Colitis Association (ACCA)
The mission of ACCA is to generate and foster awareness and educational programs targeted at
persons diagnosed with Inflammatory Bowel Disease (IBD), their families, health professionals
and the general public. Where appropriate, ACCA will publicly and financially support both pure
and clinical research into the cause of, and the cure for inflammatory bowel disease. ACCA is a
voluntary, non-profit organization committed to providing & implementing services to assist
members needs. Contact information for State & Territory branches of ACCA is available from
the national office, or via the national website.
PO Box 201
MOOROOLBARK VIC 3138
Ph: 03 9726 9008
Fax: 03 9726 9914
Email: info@acca.net.au
Web: www.acca.net.au
Australian Communication Exchange (ACE)
Australian Communication Exchange (ACE) is a not-for-profit, Australian organisation dedicated
to empowering those who are Deaf or have a hearing, speech or communication impairment, to obtain
access to the telephone and other telecommunication networks. Provides a wide range of services
including the National Relay Service (NRS) which operates 24 hours a day, seven days a week,
every day of the year.
Head Office
PO Box 473
STONES CORNER QLD 4120
Ph: 1800 555 660
TTY: 1800 555 630
Fax: 1800 555 690
Email: feedback@aceinfo.net.au
Web: www.aceinfo.net.au
Australian Council of Social Service (ACOSS)
The Australian Council of Social Service (ACOSS) is the national peak council of the community welfare
sector in Australia, the principal voice of low income and disadvantaged people in social and economic
policy matters. ACOSS aims to end poverty and help build a just and inclusive society that values
difference and the right of all people and communities to the social and economic resources they
need to control their own lives. Contact information for State & Territory branches of ACOSS is
available from the national office, or via the national website.
Locked Bag 4777
STRAWBERRY HILLS NSW 2012
Ph: (02) 9310 4844
Fax: (02) 9310 4822
Web: www.acoss.org.au
Australian Council of Stoma Associations
The Australian Council of Stoma Associations represents, at a national level, the interests of
all regional Stoma Associations in Australia. It provides liaison with the Australian
Government and appliance suppliers, coordinates support services for ostomates throughout
Australia and publishes the national journal "Ostomy Australia". Contact information for
State & Territory branches of the Australian Council of Stoma Associations is available
from the national website.
PO Box 1260
CANBERRA CITY ACT 2601
Ph/Fax: (02) 6205 1055
Email: secretary@australianstoma.org.au
Web: www.australianstoma.org.au
Australian DeafBlind Council (ADBC)
The Australian DeafBlind Council was set up in 1993 as a network for deafblind people or other
interested people. The purpose of ADBC is to be a national council representing people who are
deafblind, their support networks and organisations working in the field. Membership is open to
individuals who are deafblind, their families and other support people and organisations serving
people who are deafblind and other interested people.
PO Box 1213
CAMBERWELL VIC 3124
Ph: (03) 94392570
Fax (03) 9486 2092
Web: http://home.connexus.net.au/~dba/
Australian Dyspraxia Support Group and Resource Centre
The Australian Dyspraxia Support Group and Resource Centre was incorporated in 1998.
The group consists of parents and professionals who have children or have an interest in
helping children with dyspraxia. The Australian Dyspraxia Support Group and Resource Centre
was formed to provide support, information and education to individuals, families and
professionals and to raise the awareness and understanding of this disorder within the
general community.
PO Box 5519
SOUTH WINDSOR NSW 2756
Ph: 02 4577 6220
Fax: 02 4577 6088
Email: information@dyspraxia.com.au
Web: www.dyspraxia.com.au
Australian Ectodermal Dysplasia Support Group Inc (ozED)
OzED is a not for profit support group that was established in April 2004 to provide support
and assistance to people and families affected by Ectodermal Dysplasia.
8 Dalmatia Court
ROWVILLE VIC 3178
Ph/Fax: (03) 9755 5626
Email: info@ozed.org.au
Web: www.ozed.org.au
Australian Federation of AIDS Organisations (AFAO)
AFAO is the peak non-government organisation representing Australia's community-based response
to HIV/AIDS. AFAO's work includes education, policy, advocacy and international projects.
PO Box 51
NEWTOWN NSW 2042
Ph: 02 9557 9399
Fax: 02 9557 9867
Web: www.afao.org.au
Australian Federation of Disability Organisations
The Australian Federation of Disability Organisations is the peak national body that brings together
disability organisations. The Federation expresses the representative views of these organisations
as provided through their members. It seeks to influence and promote the human rights of people
with disabilities across Australia and ensure their full participation in all aspects of Australian
society through inclusive policies, programs and services.
Ross House
247 Finders Lane
MELBOURNE VIC 3000
Ph: (03) 96623324
Fax: (03) 96623325
Email: office@afdo.org.au
Web: www.afdo.org.au
Australian Federation of SPELD Associations (AUSPELD)
The aims of AUSPELD are to support, disseminate information and advocate in response to the
needs of children and adults who have Specific Learning Difficulties and those who teach
and care for them. Contact information for State & Territory branches of AUSPELD is
available from the national website.
7 Acron Road
ST IVES NSW 2075
Ph: (02) 9144 7977
Fax: (02) 9144 1539
Email: thelearn@bigpond.net.au
Web: www.speldnsw.org.au/auspeld.html
Australian Hepatitis Council
The Australian Hepatitis Council is the lead national agency for people with hepatitis C and
other chronic viral hepatitis. The Australian Hepatitis Council is the national body of
State and Territory Hepatitis C organisations. Hepatitis Councils provide information,
referrals, and support services to people affected by hepatitis C, and support agencies
to reduce hepatitis C transmission.
PO Box 716
WODEN ACT 2606
Ph: 02 6232 4257
Fax: 02 6232 4318
Email: info@hepatitisaustralia.com
Web: www.hepatitisaustralia.com
Australian Learning Disability Association (ALDA)
The goals of ALDA include: create a climate of public understanding, awareness and acceptance
of Learning Disability (LD) nationally; lobby at a national level to promote the understanding
of Learning Disability in education, government and community sectors; inform people with LD
of their rights under the Disability Discrimination Act; and provide educative information
relating to Learning Disability.
ALDA, DRC - Division of Student life
Deakin University
GEELONG VIC 3217
Ph: 03 52272834
Email: jennyt@deakin.edu.au
Web: http://services.admin.utas.edu.au/alda/
Australian Leukodystrophy Support Group Inc
The Australian Leukodystrophy Support Group Inc. (ALDS) is a voluntary, non-profit organisations, run by
a voluntary committee of management. The organisation was founded in August 1992 with the aim
of providing information and support to patients and families affected by this debilitating group of diseases.
10 Mitchell Street
MENTONE VIC 3194
Ph: 03 9584 7070
Fax: 03 9583 4379
Email: leuko@vicnet.net.au
Web: www.alds.org.au
Australian Lung Foundation (ALF)
The Australian Lung Foundation (ALF) is a not-for-profit Public Benevolent Institution
with Medical and Support Group representation in every state and territory in Australia.
Our vision is to be a key agent of change in Australia bringing about the understanding,
management and relief of lung disease.
PO Box 847
LUTWYCHE QLD 4030
Ph: 1800 654 301 (within Australia)
Ph: 07 3357 6388
Fax: 07 3357 6988
Email: enquiries@lungnet.com.au
Web: www.lungnet.org.au
Australian Mental Health Consumer Network (AMHCN)
The AMHCN is a nationwide network of consumers of mental health services. It exists to: promote
equity and access for mental health consumers; empower consumers to utilise all means to sustain
their mental health; and promote consumer participation and influence within the community.
PO Box 5939
WEST END QLD 4101
Ph: 07 3844 3009
Fax: 07 3844 2609
Email: secretariat@amhcn.com.au
Web: www.amhcn.com.au
Australian Paralympic Committee
The Australian Paralympic Committee (APC) is the peak national body responsible for Australia's
elite athletes with a disability.
1 Herb Elliott Avenue
Sydney Olympic Park
HOMEBUSH BAY NSW 2140
Ph: 02 8736 2600
Fax: 02 9746 0189
Email: auspara@paralympic.org.au
Web: www.paralympic.org.au
Australian Pituitary Foundation (APF)
The Australian Pituitary Foundation Ltd provides the opportunity for patient members,
together with family and friends, to meet, share and gain support through its membership network.
The APF's mission is to support, pursue, encourage, promote, and where possible fund research on
pituitary tumours in a sustained and full time effort to find a cure for these illnesses. We will
disseminate information helpful for the medical community, the public, pituitary patients and their
families on matters regarding early detection, symptoms, treatments and resources available to
patients with pituitary problems. Contact information for State & Territory branches of APF is
available from the national office, or via the national website.
PO Box 327
ALLAWAH NSW 2218
Ph: (02) 9580 6050
Fax: (02) 9585 2642
Email: pituitary@bigpond.com
Web: www.pituitary.asn.au
Australian Spasmodic Torticollis Association (ASTA)
The Australian Spasmodic Torticollis Association (ASTA) was formed in the late 1980's.
The aims of ASTA are to provide support for diagnosed sufferers, their families and carers
through meetings, newsletters and contact phone numbers. It aims to promote greater awareness
of the disease both in the community and to medical and paramedical personnel.
PO Box 133
WESTMEAD NSW 2145
Ph: 02 4754 2920
Email: asta@ihug.com.au
Web: www.asta.asn.au
Australian Spina Bifida & Hydrocephalus Association (ASBHA)
The Australian Spina Bifida & Hydrocephalus Association (ASBHA) is the peak body representing
the interests of people with spina bifida, their families and carers with the goal of improving
lives and communities. Contact information for State & Territory branches of ASBHA is available
from the national office, or via the national website.
Centre for Neurological Support - The Niche
Suite B
11 Aberdare Road
NEDLANDS WA 6009
Ph: 08 9346 7520
Email: admin@sbawa.asn.au
Web: www.asbha.org.au
Autism Aspergers Advocacy Australia (A4)
Autism Aspergers Advocacy Australia (A4) is a national organisation comprising and directly representing
people with an Autism Spectrum Disorder (ASD), their families and associates. A4 benefits its constituents
through: developing and promoting appropriate national policy; influencing relevant decisions; and monitoring
and reporting on outcomes.
PO Box 717
MAWSON ACT 2607
Email: convenor@a4.org.au
Web: www.a4.org.au
Autism Council of Australia
The purposes of the Autism Council of Australia Ltd are to work at a national level to
alleviate the deleterious effects of Autism Spectrum Disorders and enhance the support
and quality of life of people who have an Autism Spectrum Disorder, their families and
carers by: collecting and disseminating information; promoting research; and contributing
to policy development. Contact information for State & Territory Autism Associations is
available from the national office, or via the national website.
PO Box 361
FORESTVILLE NSW 2087
Ph: 02 8977 8300
Fax: 02 8977 8399
Web: www.autismaus.com.au
Batten Disease Support and Research Association (BDSRA) Australian Chapter
The Australian Chapter of the BDSRA was formed in 1995 by parents of children affected by
Batten Disease. The Association has been designed to: provide a parent communication network,
information and emotional support to families of persons affected by Batten disease; act as a
national registry for NCL researchers throughout the world and endeavour to support their work;
maximise the opportunities of persons affected by Batten disease; and educate all concerned
about the special needs required.
9 Norton Avenue
KILLARNEY VALE NSW 2261
Ph: 02 43345785
Email: gvjcando@ozemail.com.au
Web: www.battens.org.au
Better Hearing Australia
Better Hearing Australia is a non-profit, self-help organisation controlled by its
members and provides an Australia-wide community support service of rehabilitation
and help for Australia's hearing impaired. Provides a range of services including:
hearing advisory service; referral assistance; information and advice; hearing loss
management courses; assistive listening devices; hearing aids for those in need;
hearing help card; and advocacy lobbying. Contact information for State & Territory
branches of Better Hearing Australia is available from the national office, or via
the national website.
5 High Street
PRAHRAN VIC 3181
Ph: 03 95101577
TTY: 03 95103499
Fax: 03 95106076
Email: bhavic@betterhearing.org.au
Web: www.betterhearing.org.au
Beyond Blue
beyondblue is a national, independent, not-for-profit organisation working to address
issues associated with depression, anxiety and related substance misuse disorders in
Australia. beyondblue is a bipartisan initiative of the Australian, state and territory
governments with a key goal of raising community awareness about depression and reducing
stigma associated with the illness. beyondblue is unable to provide clinical advice or services.
PO Box 6100
HAWTHORN WEST VIC 3122
Ph: 03 9810 6100
Fax: 03 9810 6111
Email: bb@beyondblue.org.au
Web: www.beyondblue.org.au
Blind Citizens Australia
Blind Citizens Australia seeks to achieve equity and equality by empowering people who are
blind or vision impaired, by promoting positive community attitudes, and by striving for
high quality and accessible services which meet members' needs. Its core activities are:
individual and systemic advocacy; information dissemination; peer support; and advice to
government and community organisations. Blind Citizens News is published quarterly and is
available in large print, Braille, audio cassette, disk and email. Blind Citizens Australia's
weekly radio program Horizons is broadcast on radio throughout Australia.
PO Box 24
SUNSHINE VIC 3020
Ph: (03) 93726400 or Freecall: 1800033660
TTY: (03) 93729275
Fax: (03) 93726466
Email: bca@bca.org.au
Web: www.bca.org.au
Brain Foundation Australia
The mission of the Brain Foundation is to reduce the incidence and impact of diseases,
disorders and injuries of the brain, spine and nervous system through the provision of
support, community education and research.
PO Box 579
CROWS NEST NSW 1585
Ph: 1300 886 660
Fax: 02 9437 5978
Email: info@brainaustralia.org.au
Web: www.brainaustralia.org.au
Web: www.headacheaustralia.org.au
Brain Injury Australia
Brain Injury Australia's mission is to improve the quality of life for all people with acquired
brain injury and their families to enable their full social and economic participation in the
community. It advocates at the national level for people with acquired brain injury and their families.
86 Herbert St
NORTHCOTE VIC 3070
Ph: (03) 9497 8074
Fax: (03) 9486 7941
Email: admin@bia.net.au
Cancer Council of Australia
The Cancer Council of Australia is Australia's national non-government cancer control organisation.
Its members are the eight state and territory cancer organisations, working together to undertake
and fund cancer research, prevent and control cancer and provide information and support for people
affected by cancer. The Cancer Council Australia's goal is to lead the development and promotion of
national cancer control policy in Australia, in order to prevent cancer and reduce the illness,
disability and death caused by cancer. Contact information for State & Territory Cancer Councils
is available from the national office, or via the national website.
GPO Box 4708
SYDNEY NSW 2001
Ph: (02) 9036 3100
Fax: (02) 9036 3101
Email: info@cancer.org.au
Web: www.cancer.org.au
Cardiomyopathy Association of Australia (CMAA)
The CMAA Ltd. is a voluntary, charitable organisation originally founded in 1994.
The Association's main aims are to: provide opportunities for members to share
experiences and support each other; provide up-to-date information about Cardiomyopathy;
increase public awareness; and foster medical research in this area. Contact information
for State & Territory contacts are available via the website.
PO Box 273
HURSTBRIDGE VIC 3099
Ph: 1300 362 787
Web: www.cmaa.org.au
Carers Australia
Carers Australia is dedicated to improving the lives of carers. Its highest
priority is to promote recognition of the important role that carers have in the
community and to empower carers to be better informed and resourced. Contact
information for State & Territory Carers Associations is available from the
national office, or via the national website.
PO Box 73
DEAKIN WEST ACT 2600
Ph: (02) 61229900
Fax: (02) 61229999
Email: caa@carersaustralia.com.au
Web: www.carersaustralia.com.au
Consumers Health Forum of Australia (CHF)
Consumers' Health Forum (CHF) is the leading national organisation providing a
voice for all health consumers. CHF's strategic direction is set by its voting
members. Voting members are consumer organisations, which represent a broad range
of health consumers such as illness groups, disability groups and specific population
groups such as youth, older people and women. CHF nominates and supports consumer
representatives on government, industry and professional committees.
PO Box 3099
MANUKA ACT 2603
Ph: (02) 6273 5444
Fax: (02) 6273 5888
Email: info@chf.org.au
Web: www.chf.org.au/index.asp
Continence Foundation of Australia (CFA)
The Continence Foundation of Australia (CFA) is a not-for-profit national
organisation with branches or representatives in each State and Territory. Its membership
is made up of people with incontinence problems, plus nurses, physiotherapists and other
health professionals and doctors who work in this area of health. Contact information for
State & Territory branches and resource centres is available from the national office, or
via the national website.
AMA House
293 Royal Parade
PARKVILLE VIC 3052
Ph: (03) 9347 2522
Fax: (03) 9347 2533
Email: info@continence.org.au
Web: www.continence.org.au
Cornelia de Lange Syndrome Association (Australasia)
The Cornelia de Lange Syndrome Association was formed in 1981 in Victoria, when three
mothers met, and for the first time in many years were able to compare their experiences.
The group was incorporated in 1995. We are a non-profit organisation which is run by
volunteers who have a family member with CdLS. We do not receive any regular Government
funding, and rely on membership fees for information dissemination via our newsletter
"Keeping in Touch" (KIT). We also produce topic specific information packages, provide
counselling, and host awareness activities.
159 Boddington Crescent
KANBAH ACT 2902
Ph: 02 62 316 866
Email: pcrawfor@austarmetro.com.au
Web: www.cdlsaus.org
COTA National Seniors (COTA)
COTA National Seniors (formerly known as Council on the Ageing) is an independent
consumer organisation run by and for older Australians and is the largest seniors
organisation in Australia. COTA National Seniors, through its Policy Secretariat and
State and Territory Councils, works as an advocate for all older people in Australia.
It offers: Information; Advice; Referral; Policy Development; Representation and
advocacy. Contact information for State & Territory branches of COTA is available
from the national office, or via the national website.
GPO Box 1583
ADELAIDE SA 5001
Ph: 08 8232 0422 or 1800 182 324
Fax 08 8232 0433
Email: cota@cota.org.au
Web: www.cota.org.au
Cri Du Chat Support Group of Australia
The Cri du Chat Support Group of Australia Inc. is based in Melbourne but provides
support, information and contact to families who have a family member with Cri du
Chat syndrome or other abnormality of chromosome five, anywhere in Australia, New
Zealand and other countries of the Southern Hemisphere. We also provide information
to professionals, students and others with an interest in the syndrome from any part
of the world.
104 Yarralumla Drive
LANGWARRIN VIC 3910
Ph: 03 9775 9962
Fax: 03 9775 9962
Email: info@criduchat.asn.au
Web: www.criduchat.asn.au
Cystic Fibrosis Australia (CFA)
CFA is a national body comprising member State Associations. The national
office is located in NSW. The national organisation assists the member
organisations to achieve common objectives by developing national education
programs and collecting and distributing information about Cystic Fibrosis (CF)
at national and international levels. Contact information for State & Territory
branches of CFA is available from the national office, or via the national website.
51 Wicks Road
NORTH RYDE NSW 2113
Ph: 02 9878 5250 or Freecall: 1800 232 823
Fax: 02 9878 5058
Email: general@cysticfibrosisaustralia.org.au
Web: www.cysticfibrosisaustralia.org.au
Deafness Forum of Australia
The Deafness Forum of Australia's mission is to improve the quality of life for Australians who
are deaf, have a hearing impairment or have a chronic disorder of the ear. The
Forum makes representations to government regarding policy and legislation; generates
public awareness; provides a forum for information sharing; and creates better understanding
between all areas of deafness. The Forum coordinates the annual National Hearing Awareness
Week which is held throughout Australia in the last complete week of August each year.
218 Northbourne Avenue
BRADDON ACT 2612
Ph: (02) 62627808
Fax: (02) 62627810
TTY: (02) 62627809
Email: info@deafnessforum.org.au
Web: www.deafnessforum.org.au
Deafness Resources Australia (DRA)
Deafness Resources Australia (DRA) is the trading division of Australian Communication Exchange
Limited (ACE), which is managed by a Board of Directors comprising no less than 51% of board members
who are Deaf, or have a speech or hearing impairment. DRA has one of the most comprehensive
ranges of deafness/hearing impairment related books in Australia. It also has a very wide range
of relevant technology (eg. TTYs, alarm clocks, telephone amplifiers, etc).
Ground Floor,
33 Argyle Street
PARRAMATTA NSW 2150
Ph: 1800 555 201
TTY: 1800 555 203
Fax: 02 9895 2972
Email: dra@deafnessresources.net.au
Web: www.deafnessresources.net.au
Diabetes Australia
Diabetes Australia Ltd is the national peak body for diabetes in Australia comprising twelve major
diabetes organisations and advocates on behalf of some 1.2 million people with diabetes in Australia
and their friends, family and carers. Diabetes Australia is a not-for-profit organisation reliant on
community support. It offers personalised and practical assistance to benefit people with diabetes and
their carers and provides a forum for the development of national policies. Contact information for
State & Territory branches of Diabetes Australia is available from the national office, or via the
national website.
GPO Box 3156
CANBERRA ACT 2601
Ph: (02) 6232 3800
Fax: (02) 6230 1535
Email: admin@diabetesaustralia.com.au
Web: www.diabetesaustralia.com.au
Disability Studies and Research Institute (DSaRI)
The Disability Studies and Research Institute (DSaRI) undertakes research into and education about
disability issues from a social perspective and promotes public debate associated with the social
dimensions of disability. The Institute involves stakeholders from universities, organisations of
people with disabilities, the research community, policy and service delivery bodies, industry and the
wider community. It aims for a wider understanding and debate about the social processes that disable people.
PO Box 301
STRAWBERRY HILLS NSW 2012
Ph: 02 9319 6622
Fax: 02 9318 1372
TTY: 02 9318 2138
Email: contact@dsari.org.au
Web: www.dsari.org.au
Disabled Surfers Association of Australia
The Disabled Surfers Association of Australia encourages disabled surfers with any permanent
disability to continue in their sport through friendship, support, encouraging competition
between members & social family events. People unable to continue surfing are encouraged to
train as qualified judges or coaches.
PO Box A14
ENFIELD NSW 2133
Ph: 02 9759 0997
Email: gary@disabledsurfers.org
Web: www.disabledsurfers.org
Disabled WinterSport Australia
Disabled WinterSport Australia is a multi-facetted, self help sporting organisation
which prides itself on its ability to enjoy the magnificent environment that is Australia's
Snowy Mountains, and equally importantly, enjoy it with fellow skiers.
15 Beverley Street
MERIMBULA NSW 2548
Ph: (02) 6495 4334
Fax: (02) 6495 4334
Email: finsko@bigpond.net.au
Web: www.disabledwintersport.com.au
Epilepsy Action Australia
We are a professional organisation committed to enhancing the quality of life for
people affected by seizures and to improving community attitudes toward seizure
disorders. We provide information, education, guidance and support to all people
affected by seizures and epilepsy. We educate the community to be supportive of
people with seizures. Contact information for State & Territory branches of the
Epilepsy Association is available from the national office, or via the national website.
GPO Box 9878
SYDNEY NSW 2000
Ph: 1300 37 45 37
Fax: (02) 9869 4122
Email: lhyde@epilepsy.org.au
Web: www.epilepsy.org.au
Fragile X Association of Australia
The association is a volunteer group of parents and friends of people affected
with fragile X syndrome. The aims of the association are to help fragile X syndrome
children and adults to realise their full potential, provide information and support
to those people whose lives have been affected by fragile X, promote acceptance and
integration of people with fragile X within the community and to raise public awareness
of fragile X.
65 View Street
ANNANDALE NSW 2038
Ph: 0409 987012
Email: fragilexassociation@optusnet.com.au
Web: www.fragilex.org.au
Glaucoma Australia
The mission of Glaucoma Australia is to minimise visual disability from glaucoma. It
accomplishes this by: increasing community awareness and understanding of glaucoma
and the need for regular eye checks; supporting glaucoma patients and their families,
especially with information; funding glaucoma research.
PO Box 420
CROWS NEST NSW 1585
Phone: (02) 9906 6640 or 1800 500 880
Fax: (02) 9439 8736
Email: glaucoma@glaucoma.org.au
Web: www.glaucoma.org.au
Guillain-Barré Syndrome (GBS) Association
The GBS Association is a registered charity that provides information and support
to those affected by the Guillain-Barré syndrome (GBS), chronic inflammatory
demyelinating polyradiculoneuropathy (CIDP) and related conditions. Contact
information for State & Territory branches of the GBS Association is
available from the national website.
PO Box 572
EPPING NSW 1710
Ph: (02) 98691839
Email: info@gbsnsw.org.au
Web: http://gbsnsw.org.au
Haemochromatosis Society of Australia
The Haemochromatosis Society of Australia is a non-profit orgainisation, operated
wholly by volunteers with the goal of increasing the awareness of Haemochromatosis
in the general public, and providing support and information to people with Haemochromatosis.
PO Box 154
COOPERS PLAINS QLD 4108
Ph: 07 3345 8051
Fax: 07 3345 8051
Email: marg@haemochromatosis.org.au
Web: www.haemochromatosis.org.au
Haemophilia Foundation Australia (HFA)
Haemophilia Foundation Australia (HFA) represents people and their families with
haemophilia, von Willebrand disorder, other related bleeding disorders and for
those infected with blood borne viruses which have occurred through the use of
blood products necessary for their treatment. We are committed to improving
care and services through advocacy, education and the promotion of research.
Contact information for State & Territory branches of the Haemophilia
Foundation is available from the national office, or via the national website.
1624 High Street
GLEN IRIS VIC 3146
Ph: (03) 9885 7800
Fax: (03) 9885 1800
Email: hfaust@haemophilia.org.au
Web: www.haemophilia.org.au
Hear a Book Service
Hear a Book Service is a non - profit organisation based in Hobart serving people with
Print Disabilities throughout Australia and New Zealand. There are over 11,200 books on the
catalogue which have been recorded by volunteers in their own homes and distributed through
Public Libraries in Australia and New Zealand.
PO Box 229
NORTH HOBART TAS 7002
Ph: 03 62341101
Fax 03 62342382
Web: www.hearabook.org.au
Heart Foundation
The Heart Foundation is an independent Australia-wide, non-profit health organization. Its
purpose is to improve the heart health of Australians and to reduce disability and death from
heart, stroke and blood vessel disease by: promoting and conducting research; conducting
education and other programs. Contact information for State & Territory branches of the
Heart Foundation is available from the national office, or via the national website.
Level 4, 407 Elizabeth Street
SURRY HILLS NSW 2010
Ph: 1300 36 27 87
Fax (02) 9219 2424
Email: heartlinesa@heartfoundation.com.au
Web: www.heartfoundation.com.au
Irritable Bowel Information & Support Association of Australia Inc (IBIS)
IBIS, the Irritable Bowel Information and Support Association, is a group of people with one thing
in common. All members either suffer or are family members of a sufferer of Irritable Bowel
Syndrome (IBS). We communicate and support each other and our families in living with IBS.
There is a wide range of strategies available for coping with IBS and we offer an abundance
of information on these.
PO Box 7092
SIPPY DOWNS QLD 4556
Email: contact@ibis-australia.org
Web: www.ibis-australia.org
Kidney Health Australia
Kidney Health Australia, formerly the Australian Kidney Foundation, was officially formed 35 years ago.
It is a non-profit organisation with a mission to be the lead organisation promoting kidney and
urinary tract health through research, advocacy, education and health service excellence.
GPO Box 9993
MELBOURNE VIC 3001
Ph: (03) 9674 4300
Fax: (03) 9686 7289
Email: anne.wilson@kidney.org.au
Web: www.kidney.org.au
Leukaemia Foundation
The Leukaemia Foundation is the only national not for profit organisation dedicated to the care and
cure of patients and families living with leukaemias, lymphomas, myeloma and related blood disorders.
GPO Box 9954
SYDNEY NSW 2001
Ph: 07. 3866 4000 or Freecall 1800620420
Fax: 07. 3866 4011
Web: www.leukaemia.com/leukaemia-foundation/web/index.asp
Limbkids Support Association Inc
Limbkids Support Association Inc is a non-profit, voluntary organisation comprised of parents,
professionals and interested people concerned with the care of children who have congenital or
acquired limb differences.
PO Box 244
WEST BURLEIGH QLD 4219
Ph: 07 5533 9754
Fax: 07 5533 9754
Email: president@limbkids.asn.au
Web: www.limbkids.asn.au
Link Magazine
Link Magazine is Australia's national magazine examining issues from a cross-disability
perspective. Link strives to provide easily accessible disability information to assist
individuals with a disability, their family and friends, professionals in the field and policy makers.
GPO Box 909
ADELAIDE SA 5001
Ph: 08 8201 3223
Fax: 08 8201 3238
Email: editor@link.disability.com.au
Web: www.link.disability.com.au
Lupus Australia Foundation
The Lupus Australia Foundation is a volunteer organisation dedicated to providing information,
support and advocacy for people with Systemic Lupus Erythematosus and Discoid Lupus. The
Foundation is active in increasing the public's awareness of Lupus so that hopefully there
will be earlier detection of the disease, resulting in prompt diagnosis and management. Most
importantly the foundation is helping the patients, their families and friends to learn more
about Lupus and how best to cope with it. Contact information for State & Territory branches
of Lupus Australia is available from the national office, or via the national website.
Level 2, 247-251 Flinders Lane
MELBOURNE VIC 3000
Tel: (03)9650 5348
Fax: (03)9663 4210
Email: laf@lupusvic.org.au
Web: www.lupusvic.org.au
Lymphoedema Association of Australia
The Lymphoedema Association of Australia was founded in 1982 to encourage research into
lymphoedema (lymphedema) and its treatment, and to spread information about these among
doctors, therapists and patients.
94 Cambridge Terrace
MALVERN SA 5061
Ph: 08 82712198
Fax: 08 82718776
Email: casley@internode.on.net
Web: www.lymphoedema.org.au
Lysosomal Diseases Australia (LDA)
Lysosomal Diseases Australia (LDA) is a national umbrella organisation formed to represent
the interests of people effected by lysosomal storage disorders including their families and
carers, to maximise resources available for support services, treatment and research.
Women's and Children's Hospital
72 King William Road
NORTH ADELAIDE SA 5006
Phone: (08) 8161 7293
Fax: (08) 8161 7100
Email: slazenkas@medicine.adelaide.edu.au
Web: www.lda.org.au
ME/Chronic Fatigue Syndrome Association of Australia
The ME/Chronic Fatigue Syndrome Association of Australia provides a range of services for
and on behalf of people who suffer from Myalgic Encephalomyelitis (ME), Chronic Fatigue
Syndrome(CFS) and related illnesses. Services include: information, advice, referral;
support; education, training; advocacy and research.
23 Livingstone Close
BURWOOD VIC 3125
Ph: (03) 9888 8991
Fax: (03) 9888 8981
Email: mecfs@mecfs.org.au
Web: www.mecfs.org.au
Ménière's Resource and Information Centre
The Ménière's Resource and Information Centre is run by the Ménière's Support Group of
Victoria Inc (MSGV), a non-profit, self-help organisation run mainly by volunteers.
The MSGV aims to provide a high level of community support for people who have
Ménière's disease by: collecting and distributing information; counselling;
increasing public awareness of Ménière's disease; encouraging research into
more effective treatment and a cure; and providing the opportunity for members,
their families and friends to meet in a supportive atmosphere.
1254 Nepean Hwy
MT ELIZA VIC 3930
Ph: 03 9775 2972
Fax: 03 9787 2963
Email: info@menieres.org.au
Web: www.menieres.org.au
Meningitis Centre
The Meningitis Centre is a national not-for-profit organization which was established in 1992 to
help protect families from meningitis and to support those affected by the disease.
PO Box 855
WEST PERTH WA 6872
Ph: 08 9489 7791 or Freecall 1800 250 223
Fax: 08 9489 7705
Email: meningitis@ichr.uwa.edu.au
Web: www.meningitis.com.au
Mental Health Council of Australia (MCHA)
The Mental Health Council of Australia (MHCA) is the independent, national representative
network of organisations and individuals committed to achieving quality mental health for
everyone in Australia. We do this by: providing education; influencing mental health reform;
carrying out research; consultation and representation.
PO Box 174
DEAKIN WEST ACT 2600
Ph: 02 6285 3100
Fax: 02 6285 2166
Email: admin@mhca.com.au
Web: www.mhca.com.au
Mental Health Foundation Australia (MHFA)
The Mental Health Foundation Australia (MHFA) aims to raise funds to promote: mental health & wellbeing;
public involvement in mental health; removal of the stigma linked with mental illness; research on
mental health issues; effective prevention programmes; mental health education.
270 Church St
RICHMOND VIC 3121
Ph: 03 9427 0407
Fax: 03 9427 1294
Email: admin@mhfa.org.au
Web: www.mhfa.org.au
Mental Illness Fellowship of Australia
The Mental Illness Fellowship of Australia (formerly Schizophrenia Fellowship's Council of Australia) was
established as the national body with state and territory member organisations which support and represent
people with a severe mental illness and their carers. The Mental Illness Fellowship of Australia is an
incorporated non-government, not-for-profit organisation with members in all mainland states and
territories. The Fellowship represents people affected by severe mental illness.
PO Box 844
MARLESTON SA 5033
Fax: (08) 8221 5159
Email: webmaster@schizophrenia.org.au
Web: www.mifellowshipaustralia.org.au
Metabolic Dietary Disorders Association (MDDA)
The MDDA is a self-help, not-for-profit, family-support group that was set up in 1996 to assist
members and their families with the complex issues in dealing with metabolic dietary disorders.
The MDDA is a registered charity, membership is Australia-wide and includes families from
countries around the world.
PO Box 33
MONTROSE VIC 3765
Ph: 03 9728 8460 or Freecall: 1800 288 460
Email: mdda@optusnet.com.au
Web: www.mdda-australia.org
Motor Neurone Disease Association of Australia (MNDAA)
The Motor Neurone Disease Association of Australia (MNDAA) is the peak body for MND Associations
in Australia. Members of the Association are the MND Associations in each State. The mission
of MNDAA is to optimise quality of life for people living with Motor Neurone Disease (MND).
Contact information for State & Territory branches of the MNDAA is available from the national
office, or via the national website.
17 Linden Avenue
PYMBLE NSW 2073
Tel: (02) 99839662 or Freecall 1800 777 175
Fax: (02) 99839662
Email: info@mndaust.asn.au
Web: www.mndaust.asn.au
MS Australia
The MS Society offers specialist services to people with MS, their families, friends and carers
around Australia. We also offer training and information to health professionals and other
relevant agencies. Direct client services are managed and delivered at state level by the
state MS Societies. Contact information for State & Territory branches of the MS Society
is available from the national office, or via the national website.
Studdy MS Center
Joseph Street
LIDCOMBE NSW 2141
Ph: 02 9646 0600
Fax: 02 9646 0675
Email: infoline@mssociety.com.au
Web: www.msaustralia.org.au
Mucopolysaccharide & Related Diseases Society of Australia (MPS)
The Australian MPS Society is a non profit organisation formed by parents, relatives and friends of those
suffering from a range of rare genetic disorders known collectively as the mucopolysaccharide (or MPS)
diseases. The MPS Society supports individuals affected with MPS, parents of affected children,
other relatives and friends of affected children. As well, we extend our support to those affected
by related disorders and invite them to be members also.
PO Box 623
HORNSBY NSW 1630
Ph: 02 9476 8411
Fax: 02 9476 8422
Email: info@mpssociety.org.au
Web: www.mpssociety.org.au
Multicultural Mental Health Australia (MMHA)
Multicultural Mental Health Australia (MMHA) provides national leadership in mental health and
suicide prevention for Australians from culturally and linguistically diverse (CALD) backgrounds.
MMHA links a wide range of state and territory mental health specialists and services, advocacy
groups and tertiary institutions to promote the mental health and well being of Australia's
diverse communities.
Locked Bag 7118
PARRAMATTA BC NSW 2150
Ph: 02 9840 3333
Fax: 02 9840 3388
Email: admin@mmha.org.au
Web: http://mmha.org.au
Muscular Dystrophy Australia (MDA)
The national organization for and on behalf of people with Muscular Dystrophy
and related Neuromuscular Disorders.
GPO Box 9932
MELBOURNE VIC 3001
Ph: 03 9320 9555
Fax: 03 9320 9595
Email: Info@mda.org.au
Web: www.mda.org.au
Narcolepsy and Overwhelming Daytime Sleep Society of Australia (NODSSA)
NODSS is a national, not-for-profit organization. NODSS aims to: provide support for people with
narcolepsy and any other sleep disorder; to encourage research; and to gather information and
to provide a means of access to this for interested persons. Services provided by NODSS
include: 24 hour phone counseling and information service; newsletter; publications; meetings.
PO Box 100
ROSANNA VIC 3084
Ph: 03 9761 9767
Email: info@nodss.org.au
Web: www.nodss.org.au
National Association of People Living with HIV/AIDS
The National Association of People Living with HIV/AIDS represents people living with HIV/AIDS
and community based groups.
PO Box 51
NEWTOWN NSW 2042
Ph: (02) 95578825
Fax: (02) 95579461
Email: admin@napwa.org.au
Web: www.napwa.org.au
National Breast Cancer Centre (NBCC)
The mission of the NBCC is to reduce mortality and improve the well-being of women
diagnosed with breast or ovarian cancer. The NBCC was established in 1995 by the
Australian Government in response to community concerns about the human cost of
breast cancer. In 1999 the Government provided funding to expand our work into
ovarian cancer. Services include: information and referral; support; education;
training; research; advocacy.
Locked Bag 16
CAMPERDOWN NSW 1450
Ph: 02 9036 3030
Fax: 02 9036 3077
Email: directorate@nbcc.org.au
Web: www.nbcc.org.au
National Council on Intellectual Disability
The mission of the National Council on Intellectual Disability is to work to make the
Australian community one in which people with an intellectual disability are involved and
accepted as equal participating members.
PO Box 771
MAWSON ACT 2607
Ph: (02) 62964400
Fax: (02) 62964488
Email: ncid@dice.org.au
Web: www.dice.org.au
National Disability Abuse & Neglect Hotline
The National Disability Abuse & Neglect Hotline receives reports of abuse and neglect of people
with with disability using government-funded disability services and refers allegations to
appropriate government agencies for investigation. Reports of abuse and neglect in other
situations are also accepted and callers are referred to other forms of assistance as appropriate.
Locked Bag 2705
STRAWBERRY HILLS NSW 2012
Ph: 1800 880 052
Fax: 02 9318 1372
Email: enquiries@disabilityhotline.org
Web: www.disabilityhotline.org
National Disability Complaints Resolution & Referral Service (CRRS)
The CRRS is a service that investigates complaints about Commonwealth funded disability
employment and advocacy services. If you have a problem at work or with an advocacy service
and need some help making a complaint, the CRRS can help. Some of the problems the CRRS can
help you with are: Problems with your pay; When you are not getting the support you need to
do your job properly; When you are having problems with someone you work with; When your advocate
won't help you. Anybody who is concerned about a person using or working for the following
services can contact the CRRS: Commonwealth funded disability advocacy organization;
Commonwealth funded disability employment service.
Locked Bag 2705
STRAWBERRY HILLS NSW 2012
Ph: 1800 88 00 52
TTY: 1800 301 130
Fax: (02) 9318 1372
Web: www.pwd.org.au/crrs.html
National Dementia Behaviour Advisory Service
The National Dementia Behaviour Advisory Service provides advice on managing behaviours
of concern to those who care for a person with demetia. Confidential, comprehensive
telephone advice. 24 hours a day. 7 days a week.
27 Conynham Street
GLENSIDE SA 5065
Ph: 1300 366 448
Fax: 08 8338 3390
Email: ndbas@alzheimerssa.asn.au
National Ethnic Disability Alliance
The National Ethnic Disability Alliance represents the rights and interests of people from non English
speaking backgrounds with a disability, their families and carers. The Alliance works with ethnic
organisations, the disability sector and government to secure equitable outcomes for its constituency.
PO Box 9381
HARRIS PARK NSW 2150
Ph: (02) 96878933 or Toll Free 1800629072
TTY: (02) 96876325
Fax: (02) 96355355
Email: neda@neda.org.au
Web: www.neda.org.au
National Family Carers Voice
The National Family Carers Voice provides the Australian Government with advice
on specific carer issues and options for addressing the longer term needs of family carers.
C/- Office of Carers and Disability
Department of Family and Community Services
Box 7788
CANBERRA MAIL CENTRE ACT 2610
Ph: 1300653227
TTY: 1800672682
Fax: (02) 62447976
Email: nfcv@facs.gov.au
Web: www.facs.gov.au/disability
National Stroke Foundation
The National Stroke Foundation is a not for profit organisation that works with the public,
Government, health professionals, patients, carers and stroke survivors to reduce the impact
of stroke on the Australian community. It does this by: promoting and conducting research;
developing and implementing policy on the prevention and management of stroke; educating
the public; and encouraging the development of comprehensive and co-ordinated services.
Level 3, 167-169 Queen Street
MELBOURNE VIC 3000
Ph: 03 9670 1000
Ph: 1800 787 653 (Information line)
Fax: 03 9670 9300
Web: www.strokefoundation.com.au
Neurofibromatosis Association of Australia (NFAA)
Neurofibromatosis Association of Australia (NFAA) Inc. was founded in 1985 with the aim of bringing
together individuals and families with Neurofibromatosis (NF) for mutual support. The aims of the
Association are to: support members; increase public awareness; increase awareness amongst medical
and health care professionals; alert educational authorities to learning problems; and promote research.
PO Box 603
LINDFIELD NSW 2070
Ph: 02 9416 6244
Email: info@nfaa.org.au
Web: www.nfaa.org.au
NICAN
NICAN is information on recreation, tourism, sport and the arts for people with disabilities
and supports an Australian society where any recreational opportunity values diversity,
supports freedom and choice and strengthens inclusive communities. NICAN aims to create
active and dynamic national links between people, places and resources that improve access
to recreation experiences for people with disabilities and their communities. NICAN provides:
Information Service; Membership; Qantas Carer Concession Card; Conference information; Newsletter.
PO Box 407
CURTIN ACT 2605
Ph: (02) 6285 3713 Freecall/TTY: 1800 806 769
Fax: (02) 6285 3714
Email: info@nican.com.au
Web: www.nican.com.au
Parkinson's Australia
Parkinson's Australia Inc. was established in 1987 as the National Australian Parkinson's
Association (NAPA) to co-ordinate the activities of the various state PD organisations in
the areas of: publishing; lobbying the federal Government on issues of concern to Australian
Parkinsonians; fund raising; and promotion of awareness of the issues confronting Australia's
Parkinsonians. Contact information for State & Territory branches of Parkinson's Australia is
available from the national office, or via the national website.
Concord Hospital
Bld 64, Hospital Road
CONCORD NSW 2139
Ph: (02) 9767 7881 or Freecall: 1800 644 189
Fax: (02) 9767 7882
Email: parkinsonsnsw@bigpond.com
Web: www.parkinsons.org.au
People with Disability Australia (PWDA)
People with Disability Australia Incorporated is a national peak disability rights
and advocacy organisation. Its primary membership is made up of people with disability
and organisations primarily constituted by people with disability. Services include
the Individual and Group Advocacy Service, which is a free, non-legal advocacy service
for individuals and groups of people with disability who have serious and urgent problems.
Available to people with all kinds of disability across NSW. The service also gives advice
and information to people with disability and their associates about how advocate for
themselves. Other services offered by PWDA include: systemic advocacy; information and education.
52 Pitt St
REDFERN 2012 NSW
Ph: 02 9370 3100 or tollfree: 1800 422 015
Fax: 02 9318 1372
TTY: 02 9318 2138
Email: pwd@pwd.org.au
Web: www.pwd.org.au
Physical Disability Council of Australia
The Physical Disability Council of Australia represents the interests and views
of people with physical disability across Australia. It provides the communication
link between these people and decision makers in government, the community and the
business world. The Council is linked to a network of Physical Disability Councils
in each State and territory. Each Council consists of individual members who have
a physical disability, service organisations, and their families, friends and
carers - all of whom provide assistance, support and services to people with physical disabilities.
PO Box 38
WILLAWARRIN NSW 2440
Ph: (02) 6562 3248
Email: pdca@pdca.org.au
Web: www.pdca.org.au
Polycystic Ovarian Syndrome Association of Australia
Polycystic Ovarian Syndrome (PCOS) is a leading cause of infertility. The Polycystic
Ovarian Syndrome Association of Australia (POSAA) aims to promote research, understanding
and awareness of PCOS, and provide accurate information to PCOS sufferers, their families and friends.
PO Box
KINGSWOOD NSW 2747
Phone: (02) 8250 0222
Email: president@posaa.asn.au
Web: www.posaa.asn.au
Prader-Willi Syndrome Association of Australia
The Prader-Willi Syndrome Association of Australia is a self help group comprising people born
with Prader-Willi Syndrome, parents, friends and interested professionals. The objectives of the
Prader-Willi Syndrome Association of Australia include: facilitate improved management
strategies to minimise negative impact of the characteristics of the syndrome; education
of the community; promotion of and involvement in research; foster and develop quality
services; and provide emotional and practical support to people with Prader-Willi Syndrome,
their families and carers.
18 Connaught Street
CROUDACE BAY NSW 2280
Ph: 02 4946 9001
Email: northstate@primus.com.au
Web: www.pws.org.au
Psoriasis Australia
Psoriasis Australia strives to assist people with psoriasis, or those wanting to know
about psoriasis, by providing beneficial information and support enabling educated decisions
to be made on treatment choices and lifestyle changes. The Association provides the forum
where sufferers can learn how others handle problems, and provide suggestions on how to
cope better when disgruntled and disillusioned with their condition and treatments.
PO Box 1151
GLEN WAVERLEY VIC 3150
Email: pav@virtual.net.au
Web: http://home.vicnet.net.au/~psorias/
Retina Australia
Retina Australia is a voluntary peer support organisation of State and Territory groups
concerned with retinal degenerative diseases. It is our objective to provide information
and the opportunity of support to persons and families affected by Retinitis Pigmentosa
and other retinal dystrophies and to raise funds to finance scientific research into the
causes, prevention and cure of Retinitis Pigmentosa and other retinal dystrophies. Contact
information for State & Territory branches of Retina Australia is available from via the
national website.
PO Box 397
STRATHFIELD NSW 2135
Ph: 1800 999 870
Email: ransw@retinaAustralia.com.au
Web: www.retinaaustralia.com.au
Rett Syndrome Association of Australia Inc
The Association was established in response to the needs of Rett Syndrome children
and their families, to develop understanding and awareness of the syndrome, and to
further the advancement of study, research, therapy and care.
GPO Box 3497
MELBOURNE VIC 3001
Ph: 03 96157077
Email: rettaust@bigpond.com.au
Riding for the Disabled Association
Riding for the Disabled Association is a voluntary, not for profit, organisation which provides
riding instruction and other activities associated with riding and harness driving for people with disabilities.
PO Box 424
ASCOT VALE VIC 3032
Ph: 03 9370 2176
Fax: 03 9376 6698
Email: national@rda.org.au
Web: www.rda.org.au
Royal Institute for Deaf and Blind Children
The Royal Institute for Deaf and Blind Children is Australia's major independent special
educator, providing a wide range of educational services to children who have significant
hearing and/or vision loss, including children who have additional disabilities. The provision
of these services is the Institute's primary purpose. In affiliation with the University of
Newcastle, the Institute conducts a centre for research and professional development in the
education of children with impaired hearing or vision.
Private Bag 29
PARRAMATTA NSW 2124
Ph/TTY:(02) 98711233
Fax: (02) 98712196
Email: online@ridbc.org.au
Web: www.ridbc.org.au
Sailability Australia
Sailability is a not for profit, volunteer-based organisation which, through the activity of
sailing, enriches the lives of people with any type of disability, the elderly, the financially
and socially disadvantaged. Sailability Australia's key objective is to encourage and facilitate
sailing and boating throughout Australia for people with disabilities in social, recreational
and competitive activities.
PO Box 83
SANDRINGHAM VIC 3191
Ph: 03 9597 0066
Fax: 03 9598 7384
Email: david@yachtingvictoria.com.au
Web: www.sailability.org/au/australia/
SANE Australia
SANE Australia is a national charity helping people affected by mental illness through:
campaigns; education; and research. It runs Australia's only freecall national mental
illness Helpline and other programs.
PO Box 226
SOUTH MELBOURNE VIC 3205
Ph: 03 9682 5933
Ph: 1800 187 263 (SANE Helpline)
Fax: 03 9682 5944
Email: info@sane.org
Web: www.sane.org
Seeing Eye Dogs Australia (SEDA)
SEDA is a national organisation, providing Seeing Eye Dogs free of charge to blind people.
Among its many roles and services, the national centre in Victoria breeds and trains its
own dogs. Pedigree Labrador Retrievers and Golden Retrievers are mostly used.
17 Barrett Street
KENSINGTON VIC 3031
Telephone (03) 9381 6400 or Toll Free 1800 037 773
Fax (03) 9381 6464
Email: info@seda.com.au
Web: www.seda.com.au
Short Statured People of Australia (SSPA)
The Short Statured People of Australia (SSPA) is a non-profit, self-help organisation that
provides support and information for people of short stature (dwarfs) who don't (or won't)
reach the height of 150 cm. (4"11") at maturity, parents of short-statured people, siblings
of short-statured people, and other interested members of the community. Our main aim is to
assimilate people of short stature into society with the goal of equality of education and
social status, and of employment opportunities. Contact information for State & Territory
branches of SSPA is available from the national office, or via the national website.
35 Marrbridge Road
MOORABBIN VIC 3189
Ph: (03) 95557676
Email: enquiries@sspa.org.au
Web: www.sspa.org.au
Special Olympics Australia
Special Olympics is the world's largest year-round program of sports training
and competition for individuals (age 8 and older) with intellectual disabilities.
Through its grass-roots sports programs, Special Olympics provides long-term benefits
to participants' health, self-esteem and social integration.
PO Box 712
GLEBE NSW 2037
Ph: 02 9552 6188
Fax: 02 9552 3848
Email: info@specialolympics.com.au
Web: www.specialolympics.com.au
Spinal Cord Injuries Australia
Spinal Cord Injuries Australia was formed as the Australian Quadriplegic Association in September
1967 to provide suitable accommodation for young people with severe spinal cord injuries. Our
services have expanded as the need and opportunity arose. We now extend our services to all
people with physical disabilities. Provides a range of services including: SCI Access Australia;
Accommodation; Advocacy; Education; Rehabilitation & Peer Support; SCIWorkforce-Employment Service.
PO Box 397
MATRAVILLE NSW 2036
Ph: 02 9661 8855
Fax: 02 9661 9598
Email: office@spinalcordinjuries.com.au
Web: www.spinalcordinjuries.com.au
Thalassaemia Association of Australia
The Thalassaemia Association of Australia is an umbrella organisation formed by the various
State organizations. The objectives of the Association include: to promote education,
welfare and scientific endeavours in the field of Thalassaemia and related disorders;
and to liase with the Federal Government, other bodies and institutions on any national
issue of relevance to Thalassaemia and related disorders. Contact information for State & Territory
branches of the Thalassaemia Association of Australia is available via the national website.
PO Box 80
MARRICKVILLE NSW 2204
Ph: 02 9550 4844
Web: www.thal.murdoch.edu.au/thalframeset.htm
Thyroid Australia
Thyroid Australia is a support organisation for people with thyroid conditions
as well as their families and their friends. It is a voluntary organisation whose
founding members have suffered or been affected by various thyroid conditions and
who wish to help others in similar situations. It provides: personal support,
counselling and advice; information and training; awareness raising; advocacy; and
fundraising for research.
333 Waverley Road
MOUNT WAVERLEY VIC 3149
Ph: 03 9888 2588
Fax: 03 9561 4798
Email: admin@thyroid.org.au
Web: www.thyroid.org.au
Tourette Syndrome Association of Australia (TSAA)
TSAA is a voluntary and non-profit organisation consisting of people with TS, their families, health
and education professionals and other interested and concerned people. The association disseminates
educational materials in the fields of health care, education and welfare service, provides
telephone counselling and operates support groups. We support parent advocacy and other services
to help families cope with problems that may occur with TS. The association publishes a quarterly
newsletter. We continue to work towards seeking better treatments and improving the overall
quality of life for people with TS. Contact information for State & Territory branches of TSAA
is available from the national office, or via the national website.
PO Box 1173
MAROUBRA NSW 2035
Ph: (02) 9382 3726
Fax: (02) 9382 3764
Email: info@tourette.org.au
Web: www.tourette.org.au
Vestibular Disorders Society of Australia Inc. (VEDSA)
VEDSA is a nonprofit society that provides information to the public and health professionals
about inner-ear balance disorders such as Ménière's disease, BPPV, and labyrinthitis. VEDA
offers education and support through its books, videos, resource lists, explanatory publications,
and membership services.
PO Box 1022
UNLEY SA 5061
Ph: (08) 8358 0444
Email: vedsa@vestibular.com.au
Web: www.vestibular.com.au
Vision Australia Foundation
Vision Australia Foundation is a not-for-profit organisation providing services and facilities
for people who are blind or vision impaired, or experiencing other disabilities. Since 1895,
Vision Australia has led the development and provision of services to blind and vision impaired
people, and is internationally recognised for its expertise in the field of sensory loss linked
to ageing.
7 Mair Street
BRIGHTON VIC 3186
Ph: 1800 331 000
Web: www.visionaustralia.org.au
Wegener's Granulomatosis Support Group of Australia (WGSGA)
The Wegener's Granulomatosis Support Group Of Australia Inc. is a non-profit organization
dedicated to providing emotional and informational support to patients with Wegener's
Granulomatosis (WG), to assisting them and their families in understanding the disease
and recovery process, to educating and raising awareness in the general public and the
medical community about WG, and to supporting research into the cause and cure of WG.
PO Box 393
GREENSBOROUGH VIC 3088
Email: wally.v@wegenersaustralia.com
Web: www.wegenersaustralia.com
Women With Disabilities Australia (WWDA)
Women With Disabilities Australia (WWDA) is the peak organisation for women with all types of
disabilities in Australia. It is a federating body of individuals and networks in each State and
Territory of Australia and is made up of women with disabilities and associated organisations.
WWDA is run by women with disabilities, for women with disabilities. It is the only organisation
of its kind in Australia and one of only a very small number internationally. WWDA is unique,
in that it operates as a national disability organisation; a national women's organisation; and
a national human rights organisation. The aim of Women With Disabilities Australia (WWDA) is to
be a national voice for the needs and rights of women with disabilities and a national force to
improve the lives and life chances of women with disabilities.
PO Box 605
ROSNY PARK TAS 7018
Ph: (03) 62448288
Fax (03) 62448255
Email: wwda@wwda.org.au
Web: www.wwda.org.au
New South Wales
Victoria
Tasmania
Western Australia
Australian Capital Territory
Queensland
South Australia
Northern Territory
If you would like to update the details of a listing, or if you would like to add a new listing, please email Women With Disabilities Australia (WWDA)
This site was developed by Carolyn Frohmader for Women With Disabilities Australia.