In Australia one could assume that a certain degree of enlightenment would accompany developed world status and economic prosperity. However for the more than 2 million women with disabilities in this country, cultural considerations are also a major barrier to equity.
What produces that inevitable association between double discrimination and domestic violence? Unfortunately double discrimination is an intrinsic element of the marginalisation experienced by women and girls with disabilities which makes them particularly vulnerable to a greater range of more frequent and more prolonged incidents of domestic violence.
The Bangkok Statement (UNIFEM 2007) issued at the UN Regional Conference on Men as Partners to Eliminate Violence Against Women (EVAW), identified the deeply embedded cultural values and negative social attitudes towards women, which result in domestic violence and the perpetuation of the failure to prosecute offenders or bring about needed changes in male behaviour. Masculine use of violence in many aspects of their lives, across diverse cultures, spills over to have harmful consequences for women and girls as well as the boys and men themselves. The Statement further emphasised that a multi-sectoral approach is needed plus an attitude of zero tolerance. These cultural attitudes and values do, in fact, affect policy makers and limit their ability to put women's rights in proper perspective, or back up policy with effective programs.
In Australia, domestic violence has an enormous economic impact on society through increased use of a range of professional and health services as well as through lost productivity. In 2002-03, Access Economics (Access Economics 2004) estimated the total cost of partner violence (using a definition including emotional, social and financial abuse) to be $8.1 billion, including a $3.5 billion estimate of pain, suffering and premature death. In both Australia and globally, women with disabilities constitute an unknown component of such productivity losses.
Irrespective of country or culture, domestic violence needs to be addressed through a gender sensitive human rights approach which encompasses strengthening police, judiciary, and service providers. There need to be programmes for rehabilitation of offenders using a multi-sectoral coordination approach and gender sensitive education. Both mainstream and alternative media need to be involved to highlight and reinforce boys' and men's caring, nurturing and non-violent attributes. Experience in developed countries, with high levels of literacy, access to media and money, has not had marked success in counteracting the predominant paradigms. The challenges in the developing world are greater.
The raft of human rights conventions and declarations which continue to emerge from the UN attests to the difficulty of curbing inhumane behaviour, and to a non-diminishing need to protect the vulnerable. For women, the Convention on the Elimination of (All Forms of) Discrimination Against Women (CEDAW) adopted by the UN in 1979, is one international attempt to address the negative imbalances affecting women. Unfortunately no mention of disabilities is made in the entire document, although once again any application of the general principles enshrined therein should ensure that neither disability nor gender discrimination persists. Thus CEDAW fails to address disability in a gender context, and signatory nations, including Australia have slipped through this loophole.
As a signatory to CEDAW, Australia must report on a regular basis to the CEDAW Committee about its achievements in meeting the requirements of the Convention. Somewhat overly positive Government reports have been counterbalanced by Shadow Reports submitted by Non Government Organisations (NGOs), notably the Women's Rights Action Network of Australia (WRANA, 2005) which undertook Australia wide consultations in 2005, including an analysis of the human rights situation for women with disabilities in each life category discussed, e.g. housing, health, education, and employment.
The CEDAW Committee's subsequent assessment of the Australian Government's combined Fourth and Fifth Reports had some constructive concluding comments (CEDAW, 2006),to make about women with disabilities. In part it said:
'.......The Committee regrets the absence of sufficient information and data on women with disabilities. The Committee requests the State Party to include adequate statistical data and analysis, disaggregated by sex, ethnicity and disability, in its next report so as to provide a full picture of the implementation of all the provisions of the Convention. It also recommends that the State Party regularly conduct impact assessments of its legislative reforms, policies and programmes to ensure that measures taken lead to the desired goals and that it inform the Committee about the results of these assessments in its next report.'
'........The Committee is further concerned that the health needs of disabled women are inadequately met due to the lack of special equipment and other infrastructure……..The Committee recommends that the State Party develop the necessary infrastructure to ensure that disabled women have access to all health services.'
WWDA regards these comments as encouragement for the Government to show leadership at a Commonwealth level, to address inequities in data collection/analysis so that these tools can be used in policy/programme development.
Women in the disability sector are further encouraged by the substance of the latest UN Convention, which addresses gender discrimination in a disability context. The Convention on the Rights of Persons with Disabilities (CPRD) was adopted by the UN in mid December 2006. More than a decade of wrangling over wording including lobbying by Australian Government delegations for inclusions of clauses wholly supported by WWDA, has seen the emergence of a document which makes numerous specific mention of gender discrimination which negatively affects women with disabilities. Paragraph (q) of the Preamble recognises that "women and girls with disabilities are often at greater risk, both within and outside the home, of violence, injury or abuse, neglect or negligent treatment, maltreatment or exploitation". Much of the work of WWDA over the past decade had been directed at reducing these manifold risks for women with disabilities both in Australia and overseas, so that to have the problems starkly articulated in the Convention validates its role.
The CPRD Article 6, entitled "Women with disabilities" further spells out actions to be undertaken. State Parties which ratify the Convention must undertake "measures to ensure the full and equal enjoyment by (women and girls with disabilities) of all human rights and fundamental freedoms." There is further need for legislation and policies which are women- and child- focussed to ensure that exploitation, violence and abuse (Article 16/5, CPRD) is identified, investigated and prosecuted. The Convention pinpoints the essential protection of the standard of living of women and girls with disabilities through social protection and poverty reduction programmes (Article 28/2(b), CPRD).
Australia was an early signatory to CPRD (nation number 43), and the Human Rights and Equal Opportunity Commission (HREOC) is taking a lead role in assisting governments, peak disability organisations, disability service organisations and individuals to understand the implications of CPRD and to identify actions which need to be taken for its successful ratification in Australia.
The elimination of poverty for women and girls is an essential strategy for reducing domestic violence. International initiatives which seek to engage the developed world in assisting developing countries are outlined in the 8 Millennium Development Goals (MDGs), the first of which is dedicated to the eradication of extreme poverty and hunger, and the 3rd of which is for the promotion of gender equality and the empowerment of women.
Across the world, cultural and social constructs limit the lives of women with disabilities. Country by country we could examine the way these limitations are manifested. The underlying changes which need to be made are already contained in the UN conventions and declarations. Work for societal change for all women and women with disabilities must be done through leadership from prime ministers and presidents, with policies and programs, advocacy and example. WWDA's systemic advocacy is directed at using these instruments both at home and abroad in this particularly unsavoury and unacceptable sphere of discrimination.
The UN Declaration on the Elimination of Violence Against Women 1993 (EVAW) defines gender-based violence as: 'Any act of gender-based violence that results in, or is likely to result in, physical, sexual or psychological harm or suffering to women, including threats of such acts, coercion or arbitrary deprivations of liberty, whether occurring in public or private life'.
In Australia, WWDA contends that definitions of domestic violence (AUSTLII 2007) are far too narrow to describe the full range of domestic situations in which women with disabilities live. Where definitions fall short of adequate description, legal and domestic systems cannot achieve justice for women clients with disabilities. A Model Domestic Violence Law was drawn up in 1999, but has never been acted upon so that essential uniformity between State/Territory and Australian Government law is lacking. Semantics do have an additional negative affect. By refusing to name the problems as 'domestic violence', or see them as criminal offences (Sherry 2000) combined with widespread use of euphemisms such 'incident', 'neglect' and 'misconduct', we trivialise and ignore them.
For women with disabilities, domestic violence needs to be widely defined. There are many factors which make us particularly vulnerable to violence and abuse both inside and outside the home. Low self esteem can act as a magnet to those who seek gratification through dominance. Power imbalances fill a void created by one person's compromised independence.
In Forgotten Sisters these factors are outlined. I ask each of you in the audience who is employed and thus relatively affluent; who is here and thus relatively mobile, and independent, to consider the affect on your psyche if any one of the following conditions applied to you. They all apply to women with disabilities.
Interventions undertaken in the name of simplifying the management of severely disabled girls can have horrific repercussions for all involved. The high profile case of the multiple interventions authorised for Ashley X (TimesOnline 2007) in the USA earlier this year was shocking enough. News last month that one of the surgeons (MSNBC 2007) involved took his own life only adds to the multiple losses and seriousness of the situation. In the UK, the sterilisation of minors is illegal, but nevertheless pursued by carer/s and their doctors. A current legal argument is being mounted there by those who would sterilise 15 year old Katie Thorpe (Telegraph Blog) in order that she not be frightened by menstrual blood. Vigilance, strong systemic advocacy, and above all support for those primarily concerned is needed. In Australia, WWDA believes that current draft legislation 'Children with Intellectual Disabilities (Regulation of Sterilisation) Bill 2006' under consideration by the Standing Committee of Attorneys-General will regulate sterilisations rather than preventing them. We need only refer back to the CRPD to see (Article 23[c]) that: "Persons with disabilities, including children, (should) retain their fertility on an equal basis with others". Blatant sexism is involved, here coupled with lack of community supports for families of children with severe disabilities.
Social, cultural, economic, physical and psychological factors all contribute to a climate in which disabled people become the victims of hate crimes. Cultural stigma coupled with poverty and the absence of support for the carer/s has drastic, violent outcomes. For girls with disabilities in developing countries, infanticide is too often a solution. Judge (1987) reviewed 13 cases where parents killed their children with disabilities. The crimes were committed through various means including shooting, poisoning, strangulation, drowning, burning and drug overdoses. In 11 of these 13 cases, the parent was not sentenced to jail.
Indian disability activist Kuhu Das (in Nelson 2003) believes that almost 90 per cent of disabled women experience sexual abuse, exploitation and violence from the very people who are supposed to be helping them - care-givers, close relatives and family members. Ugandan disability activist Patrick Kirumira (ibid.) cites the case of a blind primary school student who became pregnant after being raped by two motorcycle taxi boys. The rapists gambled on the inability of their victim to identify them. A Ugandan disability counsellor reported that it is acceptable for a disabled person to marry another disabled person so that together they share their curse rather than contaminating others.
Negative stigma against women with disabilities is particularly focussed where the disability is HIV/AIDS. Too often they do not get information in accessible formats, and may be completely excluded from treatment policy and programs. They are expendable. In community research undertaken with women with disabilities in Tanzania (Kaaven & Braathen 2006) one respondent summed up her situation: "Women are nothing to a man, they have no say in anything, they can not say no to anything…. Are men afraid that women with disabilities can not give them children? Maybe, but they are more afraid of the practical things; can she carry water and so on".
Let us narrow our gaze to violence experienced by women in the 12 months prior to interview and identify particularly vulnerable groups. Women with no post school qualifications were almost 2 times as likely to experience violence that those with higher levels of education (women with disabilities are over-represented in groups with lower levels of education). Women in lower socioeconomic groups are more than 2 times as likely to experience partner violence than those in the higher income groups (another area with over-representation of women with disabilities). Similarly, women who are unemployed are 5 times more likely to experience partner violence (the unemployment rate for women with disabilities is significantly greater than for any other group in the population). Women with a past history of child abuse (and many women with congenital disabilities are in this category) were also more at risk (women with congenital and long term disabilities are over represented here too). Lastly, women at risk are also 5 times more likely to have experienced additional violence from a second person known to them in addition to that perpetrated by their partner. Women with disabilities are vulnerable in this category too because they come into contact with a range of people who are potential perpetrators. All these propensities for partner violence are indicators of the need for a personal safety survey dedicated to women with disabilities to supplement the more general PSS.
In addition, specialist Domestic Violence courts (models are already in existence, e.g. in the ACT) should be set up in all jurisdictions. They need to be strongly endorsed so that there is no perception of less stringent action on perpetrators (Stewart 2005). Such courts can recognise the unique nature of domestic violence, enable the professionals involved to develop expertise and offer streamlined judicial decision-making. It is essential that women with disabilities can interact with people who understand their challenges. Specialised domestic violence courts offer this possibility.
Among the remedies to reduce violence against women with disabilities are:
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United Nations (1979) Convention on the Elimination of All Forms of Discrimination Against Women
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WWDA ([a] 2007) Resource Manual on Violence Against Women with Disabilities; Women With DIsabilities Australia (WWDA), Tasmania, Australia
WWDA ([b] 2007) Submission to the South Australian Government 'Review of South Australian Domestic Violence Laws' May 2007
Order Forms and information about the Manual are available on the WWDA website: www.wwda.org.au/vrm2007.htm
This site was developed by Carolyn Frohmader for Women With Disabilities Australia.